Lifestyle

‘Tinimbang sila ngunit kulang’: Filipino siblings with rare disease

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Nick Vujicic, a world-renowned inspirational speaker and evangelist with tetra-amelia syndrome, once said: “I have the choice to be angry at God for what I do not have, or be thankful for what I do have.”
The latter option prevailed for a Zamboanga del Norte-based family that appears to be deprived of everything, except love from their family.
The Atig siblings—Jeto, 18 years old; Maymay 14 years old; and Samuel 2 years old—do not meet the normal physique and communicating abilities set by the societal standards nor the opportunities that people of their age get. Their struggles, however, are overshadowed by compassion they get from their family.
Jeto, Maymay, and Samuel stand at an average height of 22 inches, a size comparable to a container of five-gallon drinking water or a six-to-eight-month-old baby.
An episode of Kapuso Mo Jessica Soho showed that although Samuel, Maymay, and Jeto’s sizes are evidently unusual for their ages, they act like normal children who value compassion and understanding by communicating in a language that only them can comprehend.
A usual 18-year-old Filipino are normally seen outside their houses, interacting with friends, and donning a school uniform. But for the case of Atigs, their Kuya Jeto is the weakest—he could not stand and walk on his own. He cannot talk, but he can show his love to Samuel and Maymay by doing little acts of leadership such as providing them with food.
The youngest, Samuel, cannot crawl. Maymay is the only one who can walk to take a bath and get her food, but this does not mean that she needs the least attention.
Samuel, Maymay, and Jeto’s case is often regarded as dwarfism, but Dr. Oliver Dampil, an endocrinologist, said the siblings are diagnosed with cretinism.
“People with dwarfism disorder can be identified by disproportionate parts of the body, while for Cretinism, body parts are proportionally smaller than usual,” Dampil told KMJS.
According to the report, accessibility issues in remote areas in the country, including the municipality of Jose Dalman in Zamboanga Del Norte, have long been pressed as community problems.
Cretinism or congenital hypothyroidism is a result of “inborn anomalies in thyroid metabolism” often caused by genetic factors and insufficient maternal iodine levels.
The Provincial Health Office of Zamboanga Del Norte said pregnant mothers opt to forsake regular checkups because of accessibility problems or the inability to pay for doctors’ services.
The health office, however, said they visit remote barangays to provide vitamins and food supplement as well as conduct health inspection and seminars.
If put in a similar case, some parents would have questioned the situation, but Charlie and Leonisa recognize that love should triumph over their unending questions.
“Masakit dahil hindi sila maka-eskwela. Maganda sana kung makakapag-aral sila kaso hindi pwede kasi hindi sila makalakad. Tinanggap na namin na ganyan na sila, na hindi na sila lalaki. Buong puso na naming sila tinanggap kasi ‘yan ang binigay ng Diyos,” Leonisa said in vernacular.
(It hurts because they could not go to school, would have been better if they could get education but it is not feasible because of their inability to walk. We accept that they will no longer grow physically. We accept them wholeheartedly because they are gifts from God).

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[js-disqus]
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Jobs

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Editors Choice

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We listed over 1,000,000 jobs from United Arab Emirates monthly.

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Accomodation option available in the market.

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THE FILIPINO TIMES provides the information that the large Filipino community in the region wants and needs.

More than just a source of information, we aim to be a hub that unites the Filipino community and bridges the thousands of miles between them.

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